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THE FLAGELLA VISION FOUNDATION
Empowering Vision, Illuminating Lives
Progress to a Cure
The urgent mission of The Flagella Vision Foundation is to make positive impact on the lives of individuals suffering from blindness due to rare ciliary retinal disease. The Foundation is a 501(c)(3) not-for-profit charitable organization founded in 2023 by a passionate family driven to find support and treatment for their loved one's blindness due to IFT140-related retinal dystrophy. Flagella is committed to accelerating life changing outcomes by advancing research and advocating for individuals and families facing the challenges associated with retinal disease. Ciliary Retinal diseases encompass a group of rare genetic blinding disorders that affect the cilia, tiny hair-like structures in the retina responsible for vision. These conditions can cause a range of visual impairments and vision loss. Flagella is committed to drive the research that will lead to treatments and cures for blinding retinal ciliopathies and build advocating communities of support.
WAYS WE HELP
The Focus of Our Efforts
RESEARCH
The Flagella Vision Foundation;s goal is to drive the research that will lead to treatments and cures for those suffering from blinding retinal ciliopathies.
ADVOCACY
The Foundation's premise is that making a real difference is not only possible but vital. Creating communities of support and shared information is essential in this rare retinal ciliopathy
disease journey to a cure.